Contact Us
Nevus Owners Outcomes Registry (NOOR)
Sponsor
Nevus Outreach
361 Southwest Drive #353
Jonesboro, AR, 72401
https://nevus.org
Registry Contact
Dr. Maggie Mangold
noor@nevus.org
501-500-1932
Institutional Review Board
North Star Review Board
https://learningirb.org/
info@northstarreviewboard.org
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Institutional Review Board (IRB)
An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at info@northstarreviewboard.org.
Visit the National Organization for Rare Disorders home page at rarediseases.org.